Author Archives: Jonathan Grinstein

Parents Informed About Treatment for Their SMA Children, But Still Want Better Communication with Health Care Staff, Survey Shows

When caring for a child with spinal muscular atrophy (SMA), health care staff do not make treatment decisions without informing parents, but there’s still room for improvement to provide information about the disease, treatment options, and prognosis for parents to feel confident about their decisions, a Danish survey reports. The research…