Kevin Schaefer,  —

Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.

Articles by Kevin Schaefer

‘SMA News Today’ Podcast Episode 4: Dr. Danielle Sheypuk

In the latest episode of the SMA News Today podcast, Dr. Danielle Sheypuk shares her perspective on the topic of disability and dating. Sheypuk is a clinical psychologist with SMA, and in her work she strives to change negative stereotypes about individuals with disabilities. Originally from Scranton, Pennsylvania, Sheypuk has…

How to Make Movies About Disability More Accurate

The upcoming film “Don’t Worry, He Won’t Get Far on Foot” by director Gus Van Sant and starring Joaquin Phoenix is already stirring up controversy in many disabled communities. Depicting the life of the late quadriplegic cartoonist John Callahan, the film is just one of many movies…

Connecting Bluetooth Technology to Power Wheelchairs

Bluetooth technology is a helpful tool in the modern world for anyone who uses a smartphone, tablet or computer on a regular basis. Connecting one of these devices to a Bluetooth can maximize efficiency, especially if you’re on the go and are trying to respond to texts, emails and phone…

Adults With SMA: Collin Pollock

In 2013, Collin Pollock decided to combine his living with SMA with his lifelong passion for barbecue. Pollock’s business WheelyQ Barbecue Sauces & Rubs not only produces authentic and original sauces, but a portion of the company’s profits go directly towards SMA research. Pollock runs the business from his home…

I’m Adaptable

I’m often told by friends that I’m a pretty chill, go-with-the-flow kind of guy. In my podcast group, I’m the peacekeeper, if and when a dispute ensues among my co-hosts. When I was on the editorial staff of North Carolina State’s student newspaper, I was the guy who…

Adults With SMA: Melissa Milinovich

Melissa Milinovich is a regular speaker at SMA conferences and uses her social media platforms to educate others about life with SMA. Over the past year, she’s been chronicling her Spinraza journey on her YouTube channel, as well as on Facebook and Twitter. She lives in Amelia, Ohio with her…

My Latest Project for BioNews

Since starting my full-time position here at SMA News Today, I’ve had the opportunity to take part in several multimedia projects. The podcast I do for this site is one of my favorite parts of my job, as I’m always fascinated to talk with other SMA individuals…