We’ve all heard the saying that PT is short for “physical torture,” and for the longest time I clung to that notion and refused to go. I did physical therapy when I was in preschool and early elementary school, but all throughout middle and high school I…
A few days ago, I found myself strapped to an operating table while a radiologist injected a needle into the side of my neck. From there, I felt a tingling sensation in my body as a specialized spinal fluid flowed throughout my insides. All the while a…
Blog Blogger Jon Morrow has made a name for himself over the years writing viral content for sites like Copyblogger, and coming on a wide range of entrepreneurial podcasts. He currently resides in Austin, Texas as the CEO of Smart Blogger, while also managing his…
In the second episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews author Ben Mattlin. Mattlin is a Los Angeles-based writer living with SMA type 2. MORE: Three resources to help with booking accessible transportation Mattlin’s first book Miracle Boy Grows…
The other night, I was out at Barnes & Noble with my dad. As we went to grab a table in the coffee shop area, I ran into an old friend and spent a few minutes talking with him and his friend over by one of the store’s…
Transferring an SMA individual in and out of their wheelchair can be a challenge, especially if you don’t have the proper equipment. While there are many types of Hoyer lifts, one of the most innovative and easy-to-use is the Molift Nomad ceiling hoist. Developed by Etac, the Molift Nomad…
November is a pretty jam-packed month for me. I’m working on a book project for the annual NaNoWriMo contest, juggling two separate podcasts, getting ready for the North Carolina Comicon. And on top of all that, I start my Spinraza injections a week from…
https://www.facebook.com/mobilityventuresauto/photos/a.780866102002354.1073741829.775116349243996/1140472656041695/?type=3&theater In 2016, Mobility Ventures released the MV-1, which is the first van to be built specifically for wheelchair users. With its wide interior space and easy-to-use ramps, the MV-1 is one of the best transportation options available today for SMA individuals. Features Features of this vehicle include an…
Green Arrow costume, image provided by Kevin Schaefer October is one of my favorite times of the year, and not just because it’s my birthday month. Call me childish, but I never grow tired of the creative Halloween costumes, the festivities, scary movies and the buckets…
As Halloween approaches and everyone crams to put together last-minute costumes, SMA parents may be wondering how they can get their kids involved. Traditional store-bought costumes are often difficult for SMA children to wear, as they’re either too tight or quite uncomfortable. However, one company wants to make sure…
