My New Role Here at ‘SMA News Today’
Since April, I’ve been writing this weekly column, and I’ve enjoyed every minute of it. Telling my…
Articles by Kevin Schaefer
The Most-Asked Question when Strangers See Me
Living with SMA or any kind of visible disability means that numerous awkward conversations inevitably will occur. It’s…
How Taking Online Classes Benefited Me in College
As summer comes to an end and many colleges and grade schools are already in full swing,…
How Amazon Alexa’s Echo Show Is Increasing My Independence
While modern technology is a nice convenience for most people, for people with SMA, it’s one of…
New Wheels, New Freedoms
After three denials by my insurance provider, countless phone calls and my amazing neurologist fighting for me,…
Common Sense 101: Every Hospital in America Should Have a Hoyer Lift
To the average person who only visits in the event of an emergency, it may seem like…
On Being Approved for Spinraza
Last week I wrote about the different perspectives within the SMA community toward Spinraza treatment,…
Not Everyone Who Has SMA Wants Spinraza … and That’s OK
December 23, 2016 was a big day for my family and me. Not only did my sister…
As My Body Weakens, I Must Adapt and Move Forward
As I’m writing this, I’m not working on a laptop, but on my iPhone. To my left is…
Rolling Through Disney: The 2017 Cure SMA Conference
There was a period when the last thing I wanted to do with my summer was spend…