Storytelling Lets Me Experience Others’ Stories, and My Own
In 2021, I kept a log of every new movie, TV show, book, and comic I watched and read…
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
In 2021, I kept a log of every new movie, TV show, book, and comic I watched and read…
In the new Netflix original movie, “Tick, Tick…Boom!,” Andrew Garfield plays the late playwright and composer Jonathan…
“The internet is a well of humanity if you dig past the surface of it.” Comedian, actor, and filmmaker Bo…
I turn 28 on the day this column goes online. Though I thought it’d be fun to publish…
When we think about key moments in our lives, such as weddings and graduations, most of us have a tendency…
The worst part about long-running sitcoms is when they hit so close to real life. This is especially true when…
I woke up to a Facebook notification inviting me to a group for my high school reunion. It dawned on…
I was wrapping up a week of vacation when I came upon a flood of posts on my Instagram feed…
“LET ME KNOW IF YOU NEED ANYTHING!” An usher exclaimed these words at the top of his lungs in the…
This year marked the second entirely virtual annual Cure SMA conference. Instead of…
Get regular updates to your inbox.