Perceptions about illness often don’t line up between children with spinal muscular atrophy (SMA) and their parents, with mothers…
Articles by Marisa Wexler, MS
A readiness program to help clinical trial sites prepare to run spinal muscular atrophy (SMA) studies has been established by…
Siblings of people with spinal muscular atrophy (SMA) who do not have the disease themselves tend to learn about…
A better understanding of the needs of adults with spinal muscular atrophy (SMA), best ensuring for their mental and social…
A family’s journey through the diagnosis and treatment of their baby girl, born with spinal muscular atrophy type 1…
Among people with spinal muscular atrophy (SMA) and other neuromuscular disorders, participation in adapted sports is associated with greater…
Problems with the secretion of survival signals from muscle cells seems to be the dominant driver of motor neuron loss…
The Muscular Dystrophy Association (MDA) is hosting an online Q&A session today to discuss the best ways that people…
As newborn screening for spinal muscular atrophy (SMA) becomes more common, ethical dilemmas will arise about the best treatment strategy…
Palliative care for babies with spinal muscular atrophy (SMA) type 1 has improved in recent decades, with greater involvement…