New Cure SMA Webinar Series to Focus on Health, Wellness
Cure SMA has developed a new three-part webinar series that delves into health and wellness topics pertinent to the…
Articles by Mary Chapman
MDA Wants Neuromuscular Disease Patients to Have Early Access to COVID-19 Vaccine
The Muscular Dystrophy Association (MDA) is encouraging the U.S. Centers for Disease Control and Prevention(CDC) to recommend that…
Neurological Alliance Report Calls for Better Treatment, Care for UK Patients
A Neurological Alliance report is calling for improved treatment and care for the 150,000 U.K. residents living…
NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
Cure SMA Offering Free Masks, Other COVID-19 Equipment to Patients
Cure SMA is offering free personal protective equipment (PPE) packages to support spinal muscular atrophy (SMA) patients in…
UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be…
PAN Foundation Offers Financial Help for SMA Treatment
People living with spinal muscular atrophy (SMA) who need financial help to pay for treatment may now apply…
‘Think 3 at 3 Months’ Drive Seeks to Raise Awareness of Infant Movement Milestones
A new campaign is seeking to raise awareness of key motor development milestones for infants that, if missed, could…
Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
Electric Bike Technologies Donates Liberty Trikes to Children to Aid Mobility
To help children with spinal muscular atrophy (SMA) gain mobility and independence, Electric Bike Technologies (EBT) is donating 10…