Author Archives: Joe Pierce

A new treatment option for the SMA community Sponsored Post

Treatment options for spinal muscular atrophy (SMA) have become available in recent years, as research about SMA itself continues to expand. This summer, the SMA community received exciting news, as the FDA approved a new treatment option called Evrysdi (risdiplam). It’s a prescription medication used to treat SMA in infants,…

Celebrating “Inchstones” in SMA

Sponsored Post

A mother’s perspective: How our family measures progress since treatment You couldn’t picture a happier or more beautiful little boy than the one who came into our lives on January 4, 2019. Little did we know, this bundle of joy we named Slade was just starting a journey that was…

It Takes a Village Sponsored Post

You may have heard the saying, “It takes a village to raise a child.” Truer words have never been spoken, especially for those of us raising a child with spinal muscular atrophy (SMA)—even after receiving treatment with ZOLGENSMA® (onasemnogene abeparvovec-xioi). Over the past couple of years, our village has included…

SMA Survey