Rarely Speaking

SMA Beyond the Clinic Webinar

On August 25, 2026, Kevin Schaefer hosted an SMA News Today community webinar featuring panel advocates Maylan Chavez, Mindy Henderson, and caregiver Dr. Al Freedman. Together, they shared practical advice and lived experiences on navigating relationships, careers, and travel while living with or caring for someone with SMA. Watch each segment here.

This segment highlights strategies for managing workplace fatigue, navigating the accommodation request process, and using self-advocacy scripts to establish a sustainable work environment.

This segment explores the challenges of dating with SMA, providing language tools to comfortably frame medical details and communicate needs to new partners with confidence.