I officially graduated with my bachelor’s degree in December, but I only just received my diploma in the mail. I’ve been expecting it for weeks now, but it was still kind of surreal, opening the manila envelope and seeing my name in fancy script,…
Columns
For the Silva family, cleaning out the basement in recent weeks has become a trip down memory lane. Pictures strewn in boxes tell stories of my childhood and how my parents did everything in their power to give me a “normal” childhood. Old textbooks remind of all the…
Trading the Flu for Cabin Fever
As someone with SMA, I always have to be more cautious of germs than most people. A simple cold can escalate into something more serious, and even become life-threatening. I have always taken what I like to refer to as “reasonable precautions.” I wash my…
SMA affects the entire family. Sometimes it’s obvious, and sometimes it’s not. Either way, each involved individual must navigate the disease, alongside its implications, and figure out a way to cope. Child or adult, male or female, parent or sibling; the…
Alas, after a long couple weeks of constantly spitting phlegm into a cup and spending hours attached to my Vest Airway Clearance System, I’m finally getting over this pneumonia and back to “normal.” Normalcy isn’t exactly something that factors into my life at any point, but I…
Different Bodies, Still Equal
I realized the other day that I am missing a collarbone. It’s something I’ve been thinking about lately. Parts of the body that appear in my writing and reading: collarbone, sternum. I memorized each term for an exam in high school —…
I am crazy about football and basketball. I even have a sports blog called The Chairman. Everyone has passions in life, some of which help them escape the hardships of this world. For many people — especially in Oregon, where I live — these are of the outdoor…
She’s 7
Ella sits in her wheelchair crying. Her mom is right there with her holding her hand. I walk into the room and stand looking at the two of them. I figure out they are in a deep conversation as Lindsay waves her hand at me.
It’s been a pretty lousy week for me, to say the least. What started as a ridiculously annoying cough in the middle of the first week of February eventually resulted in a trip to the emergency room the following Saturday. “Please don’t say the P-word, please don’t say…
A majority of my classwork this semester revolves around discussion forums: posting our analyses of different counseling theories and responding to other people’s analyses, among other things. It’s a staple of online education and, after several years of it, I’ve gotten to the point…
Recent Posts
- When an SMA diagnosis makes a headline — and when it doesn’t
- Nothing prepared us for the SMA diagnosis of our surprise baby
- Why Universal Studios Singapore didn’t feel inclusive for me
- Promising mouse study lays foundation for first gene therapy trial in SMARD1
- The ‘boondledorf’ and ‘moots’ that make up my winter survival guide
