Ella loves playgrounds despite being in a wheelchair hindering much of what she can do there. The area of the playground she has always gravitated toward is the swings. However, she has been restricted to the type of swing that “buckles” the rider in for safety,…
Columns
As I’ve written in previous columns, my college years were some of the best years of my life. I discovered my passion for journalism, made lifelong friends, became more independent, and most of all, I acquired the perfect nickname: Schaef-Dawg. Credit to my former…
My Amtrak Experience
I’d like to preface this piece by giving a shout out to one of our very own columnists, Brianna Albers. Brianna shared her experience with Amtrak on SMA News Today last year and was incredibly kind in answering all of my questions and easing my…
The internet is a valuable tool for someone like me, especially for the purpose of social platforming. I can’t do much socializing in real life. Whether the environment is too loud for me to be heard, the venue is inaccessible, or the activity is something that I physically can’t…
Wheels for Ella
Summer is here and in full force. Ice cream trucks, sprinklers, and lazy days abound. Bike riding also tops off the season. Ella can now join in a way that she couldn’t do before! Through the generosity of the Jonathan Goers Bike Club and the coordination of…
App.com recently ran a story about a college student with SMA at Georgetown University. Anna Landre graduated from Freehold Township High School, in New Jersey, as valedictorian in 2017. She is currently thriving as a college undergraduate and was recently offered a summer internship.
I’m going to state the obvious: The list of things this disease prevents me from doing is a long one. So, when I have to rely on others, patience has become an imperative virtue. If I need an itch scratched, I wait for someone to drop what they’re…
Looking Back and Looking Forward
This week, my Facebook news feed was filled with graduation pics, friends posting sentimental messages about the times they had in college, and of course, even sappier posts from their parents. Then, if friends aren’t graduating, they’re getting married, starting new jobs, or moving away from…
I’m writing this the night before my best friend’s plane lands in the U.S. I’ve been working nonstop the past three weeks to make sure everything is ready for her arrival, so this installment of my column probably won’t sound as nice or be…
On this day five years ago, I graduated from college. I realize I’m only 27, but writing that makes me feel a little extra old. I could’ve sworn it wasn’t too long ago that I was cramming into the early hours of the morning, wishing on a day…
Recent Posts
- Some boo-boos in life are obvious. Others, not so much.
- SMA Europe seeks research projects on motor regeneration, metabolism
- Guest Voice: SMA didn’t stop me from winning the game of life
- Friedreich’s ataxia therapy may protect cells against stress in SMA
- With SMA, there’s important prep work to do before I can hit the open road
