I was diagnosed with spinal muscular atrophy at nine months of age. No one ever knows what SMA is, so I always say it has something to do with my cells and their ability — or, I suppose, inability — to communicate. My brain tells my body to…
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Recent Posts
- A spreadsheet reset helps me manage my caregiving team for the new year
- Ringing in the new year with public health insurance woes
- Adding torso exercises to breathing exercises shows gains in SMA
- Scientists find molecule that may protect nerve cells in SMA
- Looking forward to the new year with more confidence than ever
