I was diagnosed with spinal muscular atrophy at nine months of age. No one ever knows what SMA is, so I always say it has something to do with my cells and their ability — or, I suppose, inability — to communicate. My brain tells my body to…
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Recent Posts
- SMA specialists face high rates of burnout, leading to delayed care
- A seasonal treat offers a reprieve from my swallowing difficulties
- Parents of children with SMA report gaps in caregiving support
- Why I’m dedicated to providing support to others in the SMA community
- Evrysdi stabilized motor, breathing function in adults with SMA
