Soaring With Hope – a Column by Ari Anderson

Ari was diagnosed with SMA Type I at 6 months of age in 1982, when the prognosis was almost hopeless. 38 years later, medical therapies have changed the prognosis to hopeful. Yet, the rest of society has a long way to catch up in how they see people with SMA. Through his column, “Soaring With Hope,” Ari shares how he changes views through advocacy, innovative technology, and determination. In his writings, Ari wants to inspire hope by helping others rise above their frustrating hardships.

Embracing the Coexistence of Joy and Sorrow

While reflecting on my life today, a witty phrase popped into my head. I laughed to myself as I thought, “I don’t have to go looking for trouble, trouble will find me.” As I’ve said before, if I didn’t have a sense of humor about some things, I would…

Advocacy Starts With Being Kind to Yourself

Today, I thought about the question, “How can I become a better advocate?” For the first time, I realized that I’d taken part in advocacy activities even when I didn’t know it. This is how it happened. I like to buy and download turn-based PC games. In these, I…

My Beautiful Journey Toward Personal Growth

Today I want to talk more about my outlook on life, as well as yours. Hopefully, nobody who regularly reads what I write ever comes away thinking that I have it all together. I will be working on my outlook and personal growth until the day I die. I hope…

Am I in Control, or Is My Chair?

Years before the pandemic, I was visiting a museum in Washington, D.C. A young child looked at me and my high-tech wheelchair. He then asked my mom, “Is he real?” I have to think from his perspective. We were at a technologically advanced museum. He probably thought that I…

Special People Enter Our Lives at Unexpected Moments

We all experience moments that change our destiny. For me, it might have been learning whether I had passed a major college exam. For others, it might be the moment their partner responds to a marriage proposal. We often anticipate this type of life-changing moment. But what about unexpected moments?…

Preparing for Surgery, I Search for a New Mantra

I like the saying, “It’s always darkest before the dawn,” but I think it’s overused. We should come up with other phrases that mean the same thing so that the idea doesn’t become too cliché. People can pick whatever words they prefer, based on their own situation. All that matters…

The Blessings That Spark My Ambitions for the New Year

I’ve recently learned about two kinds of achievements in life. One is when you’re up a creek in a bad situation, but miraculously, things seem to resolve on their own. The second is when you have to work extremely hard to achieve your ambitions, and charge through whatever life throws…

How to Make the Joy of Christmas Last All Year Long

As Christmas and the end of the year draw near, I’m reflecting on what 2021 has meant to me. If I look at the past year through a pessimistic lens, I could easily say, “Nothing has changed.” I’m still stuck at home because of the pandemic, and there’s still…