I’m about to give myself credit where credit is due: I didn’t freak out for several months. I have undiagnosed, but undeniable, health anxiety. So, I was surprised by my reaction to a recall announced last June by Philips Respironics of 13 respiratory machines, including the BiPAP machine I’ve used…
The Wolf Finally Frees Itself - a column by Brianna Albers
I knew I was in for a treat when a friend texted me in all caps: “BRIE BRIE BRIE!” I was so into the book I was reading that I took a while to check my notifications. But once I did, it didn’t take me long at all to scream…
When it comes to vendettas, I have two. One is against Sigmund Freud. Freud, the “father” of psychology, who’s known for his unbelievably misogynistic views. Google “Freud misogyny” and you’ll get a laundry list of jeremiads decrying his influence on the mental health profession. Some of my favorites include…
Our Lives Are Evidence
Every August, I sit across from a nurse and prove that I am, in fact, still disabled. Disclaimer: I completely understand why assessments are necessary. I’m the beneficiary of countless government programs, from Medicaid to much-needed support funds. I’m not just blessed, I’m privileged as all get-out. I dislike the…
Weeks ago, when my friend Sherry and I started brainstorming topics for Disability Pride and SMA Awareness Month, we talked about choice. Specifically the hypothetical kind. In an ideal world, with free healthcare and radical accessibility, would we choose to stay disabled? It’s a question I’ve asked myself numerous…
I want to see myself on the big screen. Or, more accurately, I want to see my people on the big screen — folks with stubborn bodies and obstinate minds. I want to build a world in which disabled people are no longer relegated to the role of two-bit…
SMA Is Full of Contradictions
This month, I’m celebrating SMA Awareness Month the only way I know how: by recognizing that SMA is full of contradictions. Last year, I wrote an entire jeremiad on my ambivalence toward SMA Awareness Month. I didn’t hate it, but I didn’t like it, either. I recognized the benefits…
The problem with disability pride is that it’s a little bit mythical. It’s not something you can describe or explain. It’s an enigma. A paradox. It shouldn’t exist, but it does, and the illogic of it — valuing something the world abhors — makes the concept seem impossible. You…
It’s no surprise that I love seeing myself in my favorite stories. Take “Mass Effect,” for example, a science fiction media franchise by video game developer BioWare. One of my best friends, Sherry, has written several columns about the franchise, which she recently played from beginning to end. Every…
When thinking about disability pride — specifically the content I wanted to create for Disability Pride Month — I found myself returning to a quote from “Care Work: Dreaming Disability Justice” by Leah Lakshmi Piepzna-Samarasinha. “[A] core part of disability justice work [is] making the next world, the…
Recent Posts
- This Christmas, I’m thankful to have resolved some health complications
- No one knows what they’re doing and everyone is doing their best
- Itvisma approval ushers in era of therapeutic choice for SMA patients
- There’s no place like home for the holidays
- Newborn screening for SMA boosts health, saves money: Study review
