Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age 70 while wearing functional, ladylike skirts. Robin has SMA type 3, which was diagnosed before she turned 10. Lately, she’s more vocal, writing down her thoughts and sharing…
Guest Voices
Joanna Buoniconti is a writer and editor based in western Massachusetts. She was diagnosed with SMA type 2 in 2000 at 10 months old. Aside from writing, she has a book editing business and contributes a monthly column about disability advocacy to a local newspaper. In her free time,…
Jeffrey Selby is a proud husband to his wife, Angie, whom he married in 2017. Together, they’ve built a life full of love and laughter. Jeff, a licensed real estate agent, has spinal muscular atrophy (SMA) type 3. He spends his time supporting others with the disease.
Recent Posts
- MDA Engage: Seminar connects neuromuscular community in Hershey
- SMA treatment pause during pregnancy tied to mild motor decline
- European review of SMA therapy awaits upcoming results from US facility check
- Finding joy in being there for someone who is there for me
- Introducing my latest diagnosis: Arthritis of the right hip
