Soaring With Hope – a Column by Ari Anderson

Ari was diagnosed with SMA Type I at 6 months of age in 1982, when the prognosis was almost hopeless. 38 years later, medical therapies have changed the prognosis to hopeful. Yet, the rest of society has a long way to catch up in how they see people with SMA. Through his column, “Soaring With Hope,” Ari shares how he changes views through advocacy, innovative technology, and determination. In his writings, Ari wants to inspire hope by helping others rise above their frustrating hardships.

Say Yes to Yourself and Your Ambitions

Over the years, I’ve thought, “I wish I didn’t have all of these responsibilities and could just have fun all of the time. Living with SMA provides enough pressure that I didn’t ask for!” Growing up, I would frequently hear, “Go study for those two tests you have at the…

Life Is an Adventure, So Let’s Be Pioneers

To make my sometimes hazardous life with SMA less scary and more exciting, I tend to think of myself as a pioneer. As my previous column noted, I carry a lot of “baggage,” or experiences, during my travels. In 1803, as PBS noted, U.S. President Thomas Jefferson commissioned…