Wouldn’t it be wonderful if we could easily put into practice the lessons we learned growing up? We were taught to think about the effects of our decisions, but sometimes it is difficult to know how our actions may affect the lives of other people. For those of us with…
Soaring With Hope – a Column by Ari Anderson
To make my sometimes hazardous life with SMA less scary and more exciting, I tend to think of myself as a pioneer. As my previous column noted, I carry a lot of “baggage,” or experiences, during my travels. In 1803, as PBS noted, U.S. President Thomas Jefferson commissioned…
Doesn’t it feel like we all carry a lot of baggage in life? If we could just forget about all the negatives, we could live on cloud nine. What if I told you that we would be permanently stuck on ground level, going nowhere in life, without all the heavy…
Recent Posts
- Women with SMA can have successful pregnancies with team-based care
- Test using zebrafish model helps doctors rule out SMA in 2 infants
- Temperature regulation is challenging, but vital with SMA
- When an SMA diagnosis makes a headline — and when it doesn’t
- Nothing prepared us for the SMA diagnosis of our surprise baby
