It’s not just the closeness, the sudden proximity to people other than my parents. It’s not just the dearth of mask mandates. (You’ll pry mine from my stone-cold, long-dead hands.) It’s not even the sense of possibility — for the first time in over a year, I can go places,…

A few days ago, I linked my friend Sherry to an article on spatial abolition and disability justice. I knew a few paragraphs into the article that I would be sending it to Sherry. Given her interest in disability justice and accessibility, it seemed like a match made…

Content warning: The following contains a mention of suicide. If you know me at all, you know that I love Target. I’m not proud of it. If anything, I’m this close to canceling my RedCard and Shipt membership. But I can’t deny my years-long obsession with the retail store identified…

I spent the majority of high school — and middle school, and undergrad, for that matter — stressed about my skin. I’ve written about it several times, from my cystic acne saga to the wonders of Accutane (isotretinoin). I guess you could say I’m making up for those long years…

I’ll be honest. I wasn’t sure what to write about. To the point where I briefly considered skipping this week’s column. I try not to, because I’m an overachiever who likes the accomplishment that comes from marking something off my to-do list, but … I am wrung out. My head…

It’s not that I didn’t think I’d have side effects. I hoped. Just like I hoped that COVID-19 would wind down by late last summer; just like I hoped “The Rise of Skywalker” would be, like, tolerable. But I knew better. It was a vaccine, after all, and a gnarly…

Let’s talk about the green-eyed elephant in the room. I’m a naturally jealous person. The therapist in me is convinced that my childhood has something to do with it — all those hours on the playground watching the kids on the monkey bars, wishing quietly for a body like…

I’ve dreamed of cures. Miracles that occur in the blink of an eye. One minute, I’m sitting in my wheelchair, and the next, I’m standing, walking, running. I’m wobbly on my feet, of course, and crying, because everything has changed, and I’m probably overwhelmed by the newness of it all…

According to my mother, my columns are the first result when you Google “Evrysdi (risdiplam) denial.” Which isn’t surprising. I’ve written several scathing columns about the application process, from verifying my diagnosis to correcting blatantly false insurance claims. The squeaky wheel gets the grease, or so the…

I see things that aren’t there. The writer in me realizes that, at first blush, this sounds like the opening line of a young adult novel. Take, for example, Maggie Stiefvater’s “The Raven Boys,” which opens with, “Blue Sargent had forgotten how many times she’d been told that she would…