The insecurity hits when I least expect it. I knew it would take me a while to adjust to post-grad life. I spent 20 years in school, eight of which were online. I didn’t have the social life people associate with college students living on campus. My life consisted of…
The Wolf Finally Frees Itself - a column by Brianna Albers
One might say I was giddy. Once or twice a month, I drive 20 minutes to get shot up with allergens (mold and cat dander, for the curious). So the act itself was mundane. There was nothing special about trekking across the suburbs to my clinic of choice, aka…
Anxiety and Apple Orchards Redux
Three years ago, I wrote a column about anxiety and apple orchards. After a long day at an orchard with my caregiver and her daughter, I reflected on something my therapist had said to me: “Can you feel the anxiety and do it anyway?” Three years later, life looks…
I’m about to give myself credit where credit is due: I didn’t freak out for several months. I have undiagnosed, but undeniable, health anxiety. So, I was surprised by my reaction to a recall announced last June by Philips Respironics of 13 respiratory machines, including the BiPAP machine I’ve used…
I knew I was in for a treat when a friend texted me in all caps: “BRIE BRIE BRIE!” I was so into the book I was reading that I took a while to check my notifications. But once I did, it didn’t take me long at all to scream…
When it comes to vendettas, I have two. One is against Sigmund Freud. Freud, the “father” of psychology, who’s known for his unbelievably misogynistic views. Google “Freud misogyny” and you’ll get a laundry list of jeremiads decrying his influence on the mental health profession. Some of my favorites include…
Our Lives Are Evidence
Every August, I sit across from a nurse and prove that I am, in fact, still disabled. Disclaimer: I completely understand why assessments are necessary. I’m the beneficiary of countless government programs, from Medicaid to much-needed support funds. I’m not just blessed, I’m privileged as all get-out. I dislike the…
Weeks ago, when my friend Sherry and I started brainstorming topics for Disability Pride and SMA Awareness Month, we talked about choice. Specifically the hypothetical kind. In an ideal world, with free healthcare and radical accessibility, would we choose to stay disabled? It’s a question I’ve asked myself numerous…
I want to see myself on the big screen. Or, more accurately, I want to see my people on the big screen — folks with stubborn bodies and obstinate minds. I want to build a world in which disabled people are no longer relegated to the role of two-bit…
SMA Is Full of Contradictions
This month, I’m celebrating SMA Awareness Month the only way I know how: by recognizing that SMA is full of contradictions. Last year, I wrote an entire jeremiad on my ambivalence toward SMA Awareness Month. I didn’t hate it, but I didn’t like it, either. I recognized the benefits…
Recent Posts
- This Rare Disease Day, honor a caregiver in your life
- Trial of next-generation SMA gene therapy GB221 doses first patient
- I’m working to resolve some home equipment malfunctions
- Blood vessel damage may contribute to nerve cell loss in SMA: Study
- The major life changes that led to our family’s SMA assignment
