Not everyone likes it. A while back, I was talking to a friend in Singapore who also has SMA. She mentioned that although she wanted to post something for SMA Awareness Month, she was struggling to balance her desire to advocate and raise awareness with her desire to, as…
The Wolf Finally Frees Itself - a column by Brianna Albers
When it comes to storms, I’m a dog with high levels of anxiety. Don’t get me wrong, I love the rain. A gentle rainfall is the perfect backdrop to at least half of my favorite activities. But storms are a different story. Storms are thunder and lightning and impending…
I was a bit of an Anglophile in high school. I was obsessed with anything produced by the BBC — “Doctor Who,” “Sherlock,” “Merlin,” even the 2006 retelling of “Robin Hood.” It didn’t help that my best friend lived in Scotland and often spoke in British endearments. I was thoroughly…
I’m a productivity geek. I’m not content with simply doing things. I want to do them well. And I want to do as much as I possibly can in the time I have left. Productivity has served me well. Over the years, productivity has gotten me a bachelor’s degree in…
Many, many years ago, I gave a presentation on the Americans with Disabilities Act (ADA) of 1990. I was in middle school at the time, and was hopelessly devoted to the concept of “normalcy.” I wanted more than anything to fit in. To live a different life, with cliques…
As someone who avoided the disability community for years, I am slowly learning that I am not alone — my struggles are shared by hundreds of thousands of people across the world. “The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love With Me,”…
I hoped that things would “get back to normal” — whatever that means — by mid-summer. Reader, I was disappointed. But I’m used to disappointment. After all, I spent the better part of two decades learning to embrace lockdown mentality. I’m an expert at gazing wistfully through windows and wishing…
My family has a saying: “It’s always an adventure with us.” It originated with Katelyn, an honorary member of the Albers household and my first personal care assistant (PCA). “It’s always an adventure with you,” she once said. I don’t remember the context — it could’ve been anything from…
I’m Tired of Resisting
One of my favorite writers, Leo Babauta, is known for his work on mindfulness and simplicity. His blog, “Zen Habits,” is one of few newsletters that I intentionally keep up with. My personal resource database is full of Babauta’s articles — a testament…
I am officially a baby influencer. I spent the morning tweaking my social media pages. I’ve been doing that a lot lately, ever since I graduated with a master’s degree and found myself with oodles of free time. But this was different. This was purposeful. This was in preparation for…
Recent Posts
- This Christmas, I’m thankful to have resolved some health complications
- No one knows what they’re doing and everyone is doing their best
- Itvisma approval ushers in era of therapeutic choice for SMA patients
- There’s no place like home for the holidays
- Newborn screening for SMA boosts health, saves money: Study review
