I’ve had a Spinraza consultation set up for a few months now, and was able to squeeze in a neurological evaluation during the appointment. The CT scan of my sinuses came back clean, and the ENT specialist suggested I see a neurologist about a…
The Wolf Finally Frees Itself - a column by Brianna Albers
When I first started writing this column, I wasn’t sure what to say. I have a list of potential topics that I’ve been adding to sporadically, but nothing really jumped out at me. You’re probably tired of hearing about my headaches. To be frank, I’m…
I’ve been putting this column off for a while. While I’m perfectly fine with sharing some things, I generally don’t like to talk about the people in my life. But this is something most, if not all, SMA patients deal with at some point, and I…
My head has been feeling pretty good lately, thanks to the humidifier I recently started using. So, today I walked into my ENT appointment pretty optimistic. The nurse was actually the same person who administers my allergy shots, so it was nice seeing a friendly face.
The first time one of my personal care assistants (PCAs) brought her daughter, I was kind of in awe. She was only a few months old at the time. She slept most of the day and could be trusted to lie on my bed, staring up…
My oldest cousin is getting married this weekend, and my youngest cousin is engaged. Two of my best friends are in long-term, committed relationships and talking about marriage. I turned 23 recently. All in all, I don’t feel any older, but I do feel more prone…
It’s ironic. I’ve been sick my entire life, but only in the past few months have I really felt chronically ill. I’m slowly, if not reluctantly, coming to terms with the fact that my sinus issues are chronic. A round of antibiotics and a hot…
It’s easy to forget how inaccessible the world is, especially when you’ve spent the last week and a half scrolling through social media feeds and catching up on sleep. Even when I was in Indiana, surrounded by people who were smarter than me, I found myself…
I meant to write a column while I was in Indiana. I even imagined what it would be like to sit on campus, enjoying the sunshine and pleasant bustle of the counseling center with my new Pixelbook sitting on my lap tray. The reality of the…
I’ve been struggling to get back into the swing of things now that my friends are gone. And not just with schoolwork, either. Basically, anything that isn’t Dungeons & Dragons, “National Treasure,” or self-insert role-play is having a hard time keeping my…
