Sherry “Elisa” Toh (she/her) is a Singaporean native navigating life with SMA Type II and chronic neuropathy. She was diagnosed at 13 months by none other than Dr. Lee Wei Ling, after a referral from a GP. Sherry is a hopeless romantic whose loves include fairy tales, mythology, antiheroes, video games, and tea. She is planning on pursuing a BA in English Lit, but for now she’s enjoying freelance work and volunteering for communities and causes she believes in. She hopes her columns will offer community and catharsis to those who need it. Find her @musiquevers on social media.
Every year, at the end of the annual parade on Singapore’s National Day on Aug. 9, Singaporeans across the world place our fists over our hearts in unison. We then recite our nation’s pledge, promising ourselves and our fellow citizens that we’ll “build a democratic society based on justice…
Imagine there’s a Singaporean girl with SMA. She’s exhausted by chronic neuropathy, medication, and feeling like she’s worth less than her able-bodied peers. So exhausted, in fact, she struggles with writing about her disability for SMA Awareness Month. “Google is free. Why should I have to make myself uncomfortable and…
I never planned on writing about video games for my column. But after three columns about four games by two different studios and counting, I thought it’d be fun to tell the origin story of how gaming became a big part of my life and disability advocacy. So, hit pause…
Second in a two-part series. Read part one here. “[The] universe demands diversity.” The quote above is from alien scientist Mordin Solus, who’s a character from Mass Effect, a sci-fi video game series by developer BioWare. It’s a simple yet…
First in a two-part series. I have never seen sci-fi media portray disabilities as casually as in the original trilogy of Mass Effect, a sci-fi video game series by game developer BioWare. For older fans of BioWare, the release of its remastered compilation on May 14 was a commemoration…
When I was diagnosed with SMA, my parents were confronted with a pivotal choice: stay in Singapore or move the three of us to the U.S., where they’d heard there might be an experimental gene therapy that could treat me. It’s a decision that would have altered the course of…
I am giddy with excitement. Taylor Swift’s “Fearless” plays on my iPhone as I begin writing a column about that album and its effect on my life. I know exactly what I want to say, how its structure will…
On April 9, I traveled back in time. I mean this metaphorically, of course. As much as I wish time travel were feasible in our world, it unfortunately remains the stuff of science fiction and fantasy. Thus, revisiting media I loved as a kid and looking…
A woman lies in a hospital bed, her breathing erratic and her forehead damp with sweat. She’s shaking from the pain she’s in. In a matter of days, the loss of control and sensation in her legs has spread to her right hand and is now progressing to…
The first and last time I consulted an orthopedic surgeon, I was told I had a 50-50 chance of surviving a spinal fusion. “Her lung capacity is 24% at its highest,” the surgeon told my parents. Their faces fell. I could sense their apprehension.
