As much of a geek as I am, I can’t recall the first movie I saw in theaters or the first comic book I ever read. Yet, I do remember a time in fifth grade when I heard a song that blew me away and gave me…
Embracing My Inner Alien
— Kevin Schaefer
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, Bionews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
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The 1990s cartoon “Batman: The Animated Series” remains one of my favorite shows of all time. Its mature storytelling and noir aesthetic left an impression on me as a kid, and even today I regularly rewatch episodes. Sure, I love to see my favorite superhero go head-to-head with…
I’m often asked by people how traveling works when you have SMA. The simple answer is that flying is a pain, and it’s much easier to do road trips. Over the years my family and I have gone on road trips to Florida, New York City, Missouri, Oklahoma, Colorado, Texas,…
As I wrote in a previous column, the unpredictability associated with SMA is in many ways the hardest aspect of the disease. I’ve broken my leg several times, but this was the first time the doctors allowed the bone to heal on its own, instead of casting it or performing…
To say that SMA can throw a curveball at you at any given moment is like saying that the “Star Wars” prequels could’ve benefited from more rewrites. There are some things that just go without saying, and every person who has SMA knows how unpredictable and difficult this disease…
A few weeks ago I had a conversation on Twitter with a guy about the recently announced Batgirl movie, which has Joss Whedon set to write and direct. The movie is slated to arrive in a few years. While the prospect of a Whedon-helmed Batgirl movie is enough to…
One Wednesday night when I was in high school, either freshman or sophomore year, my youth pastor, Todd, said something that has stuck with me ever since. We had youth group meetings at our church every week, and on this particular night Todd spoke about how Christians can stand out…
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