Awareness Campaign 2024: One Community. Shared Dreams.

SMA Europe’s community comprehends different generations with different needs and contexts from many different countries. The 2024 Summer Awareness Campaign aims to unite our community under one, common hashtag: #WeAreOne while enhancing the fact that even if our community is so diverse, we keep having one, common dream: to create a better world for all […]

MDA Engage Symposium: Atlanta, GA

Emory Conference Center Hotel 1615 Clifton Road, Atlanta, GA, United States

This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS), spinal muscular atrophy (SMA), Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), research and clinical trial updates for all diagnoses, as well as sessions on daily living such as nutrition, exercise, and transitioning to adulthood. Attendees will also have the chance to connect socially […]

MDA Engage Symposium: Stanford, CA

Li Ka Shing Learning and Knowledge Center- Paul & Mildred Berg Hall 291 Campus Drive, Stanford, CA, United States

This Engage Symposium will provide updates on all neuromuscular diseases including Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), amyotrophic lateral sclerosis (ALS), spinal muscular atrophy (SMA), myasthenia gravis (MG), limb-girdle muscular dystrophy (LGMD), myotonic dystrophy (DM), Charcot-Marie-Tooth disease (CMT), Pompe disease, Lambert-Eaton myasthenic syndrome (LEMS), Friedreich Ataxia (FA), facioscapulohumeral muscular dystrophy (FSHD), and several […]

MDA Engage Symposium: Irvine, CA

The Beckman Center 100 Academy Way, Irvine, CA, United States

This Engage Symposium will offer sessions on myasthenia gravis (MG), Pompe disease, spinal muscular atrophy (SMA), and myositis, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such as navigating insurance, mental health, and […]

MDA Engage Symposium: Dallas, TX

Renaissance Dallas Hotel 2222 N Stemmons Fwy, Dallas, TX, United States

This Engage Symposium will offer sessions on amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), myotonic dystrophy, ultra-rare neuromuscular diseases, as well as research and clinical trial updates for all diagnoses. There will also be daily living sessions that are relevant for people living with all types of neuromuscular disease such […]