It is possible to cultivate marital bliss when you have SMA

Jose Flores is a motivational speaker and author from Fort Lauderdale, Florida. He shares his life with spinal muscular atrophy (SMA) type 3 on his website joseinspires.com. 

Navigating a romantic relationship when one partner has SMA is a journey marked by unique challenges and profound rewards.

SMA, a genetic disorder affecting muscle strength and movement, can shape many aspects of daily life, from mobility and independence to overall health. Despite these challenges, a relationship can thrive, rooted in open communication, compassion, and true love.

The Floreses vacation in Mexico.

One of the most significant challenges is the physical aspect of SMA. Tasks that might be simple for some couples, like going for a walk or sharing household chores, require careful planning and adaptation. This can sometimes lead to feelings of frustration or helplessness for both partners.

However, these moments also offer opportunities for growth and a deepening  bond. By approaching each challenge together, couples learn to be more patient, understanding, and supportive.

Open communication is essential in managing the ups and downs. Discussing fears, frustrations, and needs openly helps prevent misunderstandings and resentment. It allows both partners to express their emotions honestly, ensuring neither feels isolated in their struggles. Regular check-ins can foster a sense of partnership and shared responsibility, reinforcing that they are in this together.

Compassion plays a critical role in sustaining the relationship. It’s important to acknowledge the effort and strength required to manage SMA daily. Showing appreciation for each other’s contributions and being sensitive to each other’s needs helps maintain a positive and supportive environment. Acts of kindness, no matter how small, can significantly impact emotional well-being and relationship satisfaction.

The Floreses advocate with Cure SMA at Capitol Hill Day 2023.

True love transcends physical limitations and health challenges. It is the foundation that keeps the relationship strong during difficult times. Shared interests, mutual respect, and the joy of being together provide a sense of normalcy and continuity. Celebrating achievements, no matter how minor, and cherishing moments of happiness strengthen the emotional connection.

In a relationship where one partner has SMA, the journey is undoubtedly more complex, but it can also be incredibly fulfilling. The experience teaches resilience, adaptability, and the power of unconditional love. By embracing open communication, showing compassion, and relying on true love, couples can navigate the challenges of SMA and enjoy a deep, enduring connection that thrives in all seasons.

This year my wife Andrea and I are excited to have celebrated 17 years of marital bliss by working together and making it happen.

In recognition of Spinal Muscular Atrophy Awareness Month in August, the Faces of SMA campaign features a multimedia series with written essays and video interviews highlighting the real-life experiences of people affected by SMA in their own words. Follow us on Facebook and Instagram for more stories like this, using the hashtag #FacesofSMA, and check here for more.