Hey all! For my latest column, I was inspired by some of our members who are starting treatment to revisit the time in my life where I would soon be starting my own. Although, at the time, I didn’t know it just yet.
The last year and a half prior to starting Spinraza (2015-16) were challenging on my body in so many ways. I was terrified. So, to say I’m grateful for a treatment would be an understatement of the year. I recognize how fortunate I was to have started when I did, so when I see others embarking on their treatment journeys it truly lights me up inside.
If you have any questions, fears, or concerns about starting treatment— whether it’s Spinraza or Evrysdi— please leave them here.
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