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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 6 months, 1 week ago by DeAnn R.

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    • #22221
      Alyssa Silva
      Keymaster

      It was hard to read through Michael Casten’s latest column without getting teary-eyed. Losing a pet is never easy— especially when they’re still so young.

      Reading his column, you could really feel the love his family had for their beloved Vizsla. I’ve had dogs my entire life, and they truly are a gift. While the dogs I’ve had all had extremely different personalities, one commonality always held true: their ability to give unconditional love never failed to brighten even my darkest of days.

      I’m sure having pets on top of caring for a medically fragile child wasn’t easy on my parents, but I’m so glad they made it work. Does (did) your family have pets? How have they made an impact, if at all, when it comes to life with SMA?

    • #22226
      DeAnn R
      Keymaster

      When I suggested considering a pet for Christmas I got a little resistance from parents.  I didn’t mean just to do it on a whim, but if you’re already considering a pet I think it’s a great gift option.  Yes, it is an added responsibility, but kids can learn so much about life from a pet.  I feel the enjoyment a pet brings outweighs the added work.  Losing a pet is always difficult, but again going through that is part of life’s lessons.  They’ll cherish the memories of Potter.

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