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    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Kevin Schaefer 9 months, 2 weeks ago.

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    • #16324
       Kevin Schaefer 

      My family and I just bought our plan tickets this week for the Cure SMA conference in June. This year it will be held at Disneyland in Anaheim, California from June 28-July 1. Here’s some more information: http://www.curesma.org/get-involved/conference/.

      Who’s planning on going? I’d love to meet some of you all in person. It’s always a great conference, and I think anyone affected by SMA (both people who have it and parents/caregivers) can benefit from going.

      If anyone has any questions about the conference or Cure SMA, feel free to ask. I’ve gone to these many times.

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