-
- Topic
- Voices
- Posts
- Last Post
-
-
Maintaining Caregiving Services
Started by:
in: SMA Parents and Caregivers
- 1
- 2
- 11 hours, 37 minutes ago
-
Help Us Improve Our Site: Paid Opportunity
Started by:
in: Adults With SMA
- 0
- 1
- 22 hours, 43 minutes ago
-
Aging Parents
Started by:
in: Adults With SMA
- 4
- 7
- 2 days, 13 hours ago
-
On Finding Caregivers
Started by:
in: SMA Parents and Caregivers
- 3
- 4
- 2 days, 17 hours ago
-
Motivation Monday: Taking Advantage of Opportunities
Started by:
in: Adults With SMA
- 1
- 2
- 2 days, 20 hours ago
-
Let’s Talk SPC’s and Other Options to Pee
Started by:
in: Adults With SMA
- 5
- 7
- 2 days, 22 hours ago
-
Meet Rizzo, the Permobil F3
Started by:
in: SMA Assistive Technology/Equipment
- 6
- 18
- 2 days, 22 hours ago
-
International Day of Acceptance
Started by:
in: Raising Awareness of SMA
- 0
- 1
- 2 days, 23 hours ago
-
Taking a Digital Detox
Started by:
in: Adults With SMA
- 1
- 2
- 6 days, 12 hours ago
-
Transitioning to Life Without My Service Dog
Started by:
in: The SMA News Today YouTube Channel
- 3
- 4
- 1 week, 1 day ago
-
Combating the Winter Blues
Started by:
in: Adults With SMA
- 2
- 3
- 1 week, 2 days ago
-
Motivation Monday: Humorous Interactions and SMA
Started by:
- 1
- 2
- 1 week, 2 days ago
-
Managing Caregivers Tips
Started by:
in: SMA Parents and Caregivers
- 2
- 5
- 1 week, 4 days ago
-
I’m Getting a New Wheelchair!
Started by:
in: SMA Assistive Technology/Equipment
- 5
- 9
- 1 week, 6 days ago
-
Maintaining Caregiving Services
Sponsored Post
Adapting to Life Outside Our Home With SMA
I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.
I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.
FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
Newest Topics
Sponsored Post
Planes, Trains, & Accessible Travel With SMA
Talk to your doctor to determine if you or your child is fit to travel.
Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.
I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.
