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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  DeAnn R 3 months, 3 weeks ago.

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    • #19525
       DeAnn R 

      Happy Tuesday everyone!

      Check out the latest episode of Dose of DeAnn: A Glimpse Into My Life with SMA, right here. In this video, I share my thoughts on the different treatments for SMA. Some of these drugs are already available, while others are in development and in clinical trials.

      As treatments like Spinraza and Zolgensma come to the market, the face of SMA is changing day by day. As such, questions and concerns arise. These concerns include access to treatment, how SMA types are categorized, and if the standard equipment for SMA individuals is really necessary. I discuss my thoughts regarding these topics.

      What questions do you have about the state of SMA research? Are you on any active treatment?

      Please let me know your thoughts, and be sure to subscribe to the SMA News Today YouTube channel if you haven’t already.

      Thanks, and hope you all have a great week!

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