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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

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    • #23394
      Alyssa Silva

      Hey everyone. Was hoping to pick your brain for a second.

      I run a nonprofit organization that raises money and awareness for SMA. This past week, we— of course— had to cancel our 11th annual gala. Needless to say, I’m heartbroken.

      That being said, I’m still determined to do something this year. SMA doesn’t take a break, so neither will we. However…

      I’m currently at a loss for ideas. Do you guys have any creative/innovative ways to raise money and/or awareness in the SMA community?

      I’m trying to find the positives here, and I’m thinking that doing something virtual will broaden our reach. I just don’t know what that something is yet.

      Would love to get your input!

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