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This topic has 3 replies, 3 voices, and was last updated 2 years, 12 months ago by Kevin Schaefer.

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    • #11963
      Kevin Schaefer
      Keymaster

      I never really had any issues with swallowing and chewing, but I know many people with SMA do. Since starting Spinraza, I have noticed that my speech has improved and is less slurred, but I eat as normally as I did before.

      For those of you who are on Spinraza and have had difficulties with chewing and swallowing, have those things improved? Can you tell a difference? I know often it takes some time to see any changes, but if you have seen anything I’d love to hear.

    • #12192
      David Z
      Participant

      I’d be very interested in such experiences as well.

    • #12199
      DeAnn R
      Keymaster

      Swallowing is difficult to gauge improvement without a swallow study. Personally I have been “cheating” with regular food more often, however I doubt I’d pass a swallow study.  It’s probably more wishful thinking than any significant improvement.

      • #12208
        Kevin Schaefer
        Keymaster

        I did a swallow study once, more to check on my speech abilities. They didn’t find anything, but the test itself was kind of a pain haha. I’m only doing that again if they make me.

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