-
Has Spinraza helped with chewing and swallowing difficulties?
I never really had any issues with swallowing and chewing, but I know many people with SMA do. Since starting Spinraza, I have noticed that my speech has improved and is less slurred, but I eat as normally as I did before.
For those of you who are on Spinraza and have had difficulties with chewing and swallowing, have those things improved? Can you tell a difference? I know often it takes some time to see any changes, but if you have seen anything I’d love to hear.
-
3 Replies
-
I’d be very interested in such experiences as well.
-
Swallowing is difficult to gauge improvement without a swallow study. Personally I have been “cheating” with regular food more often, however I doubt I’d pass a swallow study. It’s probably more wishful thinking than any significant improvement.
-
I did a swallow study once, more to check on my speech abilities. They didn’t find anything, but the test itself was kind of a pain haha. I’m only doing that again if they make me.
-
Log in to reply.