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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 2 voices, and was last updated 4 months, 3 weeks ago by DeAnn R.

    • Author
      • #19850
        DeAnn R

        Some of you use a wheelchair tray, however I’ve found they inhibit my movement too much. I would still like to come up with a solution to get my iPad from point A to point B without dropping it. My goal is to be able to bring it outside to my patio table and get it back in myself. Suggestions?

      • #19856
        Bob Heitzman

        I use a cover that folds and placed a loop made of string in the hinge, and then I use the string to drag the tablet from one surface (surface to lap, orient the tablet to pickup, etc.) to another. Not perfect.

        • #19879
          DeAnn R

          Ah ha, I get your concept. Might not work to get it outside, I have to go down a slight ramp, but it would certainly work to go from one table to another.

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