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  • What do you do when nothing goes right?

    Posted by deann-r on September 28, 2023 at 9:56 am

    It’s a typical Monday when I’m writing this.

    As hard as I’m trying, nothing is falling into place. My clinic has flu shots but not covid boosters and my primary is booked out till January. So much for making one trip and getting it all in before the snow flies.

    Then I’m trying to line up transportation to my annual neurology visit. The company I’ve used in the past doesn’t book earlier than a month in advance. I have an inkling if I wait, they’ll say no anyway. My mom’s van is less than reliable so I don’t even know if that’s a backup option. Two other companies already said no.

    Plus, my Jaco is on the fritz with a dislocated thumb. I’ll keep plugging away, but it makes me want to cry. I’m not a crier though, so I’ll just scream internally, write a post about it, then call another transportation company.

    How do you deal with frustration when nothing goes right?

    tammy replied 4 months, 2 weeks ago 3 Members · 20 Replies
  • 20 Replies
  • alyssa-silva

    Member
    September 29, 2023 at 10:10 am

    Lately, I’ve been turning into a crier. I’m getting soft in my old age. 😂 No but I have a tendency to internalize everything which is not the best way to handle things. I don’t know how to vent when I’m frustrated. If I’m having a day like you’re having, I stop trying, sleep on it, and then go back to it with a fresh mindset in the morning. Try to take it one problem at a time. Hope everything works out for you.

    • deann-r

      Member
      October 4, 2023 at 12:15 pm

      I’m sure everything will work out. It’s just frustrating and the fact that it is frustrates me even more. On the plus side I got my Jaco repaired so that’s one less frustration.

      • alyssa-silva

        Member
        October 6, 2023 at 8:44 am

        I hear you. I’m glad you got your Jaco arm fixed. One less thing to frustrate you.

  • tammy

    Member
    November 12, 2023 at 9:02 pm

    I’m having quite a Time myself with this topic. Lately everything has been going wrong all at once. I suffered a severe knee injury and still don’t have an exact diagnosis. Took x-rays and CT scan and they were not able to find anything wrong. The pain is so severe I can’t get out of my bed whatsoever. Then on top of that I had an MRI scheduled, took medical transport on a stretcher with extreme pain moving from the bed to the stretcher. Got all the way there and found out they could not do it because of the scoliosis rods in my back from my surgery as a child. Because they are metal. I have a tendency to internalize all of my struggles as well but I have been crying almost every day over this wondering if I’m ever going to be the same again. I started seeing someone from my past and things have been going really well between us. But now I feel like this is just going to cause a hindrance in that department. Especially since I’m laid up in bed and can’t move. Have been stuck here for 38 days. Waiting for my Orthopedic appointment on Thursday and hoping to find some resolution so that I can get back to being able to function in my life. This is probably been one of the worst moments of my life I’ve never had an injury this severe before

    • alyssa-silva

      Member
      November 13, 2023 at 9:41 am

      I’m so sorry to hear this Tammy. This sounds incredibly frustrating. I can’t imagine how much pain you’re in. Has your doctor been able to prescribe something for the pain? I’m sure the orthopedist will have much clearer answers to your knee injury. Thursday can’t come soon enough.

  • tammy

    Member
    November 13, 2023 at 7:11 pm

    Thank you for the well wishes! It is incredibly frustrating and depressing. My primary doctor gave me oxycodone for the pain but it really doesn’t do much other than just slightly take the edge off. My old orthopedic doctor who retired and is now working full-time in China, pulled some strings and got me an appointment with somebody he used to work with here who has experience with people with sma. Part of the reason why it’s taking me so long to get in to be seen because as you know we can’t just go to any local Yokel doctor

    • deann-r

      Member
      November 14, 2023 at 10:04 am

      How frustrating! Have they given you a brace or anything in the meantime to help immobilize it? When my ankle was sprained it helped a lot. I’m glad to hear you’re seeing a specialist. Sometimes I feel like we can get brushed aside unless we make a fuss. How far out do you have to wait for an appointment?

  • tammy

    Member
    November 15, 2023 at 4:43 pm

    No unfortunately they didn’t give me anything. The ER took X-rays and did a CT scan and said nothing is broken. Gave me some pain pills and muscle relaxers and sent me on my way. My appointment is tomorrow though I will keep you all posted once I know more

    • alyssa-silva

      Member
      November 17, 2023 at 8:11 pm

      How did things go at your appointment @tammy ?

  • tammy

    Member
    November 18, 2023 at 8:54 pm

    Not great. I had a medical transport transfer me to my appointment on a stretcher because the pain is so bad I can’t get in my chair. They hurt my injury while moving me onto the stretcher. So I got to the appointment feeling extra pain than I already was in. They said I have soft tissue damage and possibly also a tear. So there’s really nothing they can do other than help me stabilize it with a Velcro on brace. And they also gave me an anti-inflammatory meloxicam. I came home and excruciating pain from getting hurt to get on the stretcher. And then of course the doctor was pushing with his fingers around the injury which hurt. And then getting fitted for the brace. All of that manipulation aggravated it to be really. And I was in excruciating pain the whole rest of the night. Worse than I was before I went to the appointment. It has calmed down a little bit since but I’m still not feeling how I was before the appointment. Which obviously I was not 100% but it was feeling better than it is right now. I have the brace that I’m supposed to wear for a few weeks but at the moment I can’t tolerate it because it squeezes right on where the injury is. It didn’t bother me at the doctor’s office when I had it on but by the time I got home it got really bad and I had to take it off. Hoping to give it a few days just to rest after the whole Fiasco. And then I’m hoping that I can start to wear it again. Ugh it’s just I feel like I can’t win like I’m never going to be the same again

    • deann-r

      Member
      November 19, 2023 at 9:02 pm

      Shoot! Sorry to hear it was a miserable experience that aggravated your injury. Hopefully in a day or so the brace will help immobilize it if you can tolerate it. Sending healing vibes your way.

  • tammy

    Member
    November 20, 2023 at 2:43 pm

    Thank you! I appreciate all of the well wishes and concerns

    • deann-r

      Member
      November 28, 2023 at 9:25 am

      How’s your knee feeling? Were you able to enjoy Thanksgiving festivities without too much pain?

  • tammy

    Member
    November 30, 2023 at 10:55 pm

    The pain is very very slowly starting to diminish a little bit but not as fast as I would like. And not asked enough to be able to function again yet. But hopefully it will keep getting less and less. Getting reinjured going to the doctor’s appointment definitely set me back a whole week if not more. Unfortunately I was not able to have much of a Thanksgiving other than being stuck in bed and having to have someone feed me dinner. The subject of this topic is definitely resonating with me right now. And on top of all of this I’m not in the best place with the guy that I’ve been seeing, which I briefly mentioned a while back in another topic. Since then we have started things up with each other but he goes through these moments where everything is great between us and then all of a sudden he goes silent for days. He claims it’s his depression but sometimes I don’t know what to believe. Right now he’s avoiding me because I kind of snapped at him earlier when he called after not hearing from him for an entire week. Not a text or anything asking how my knee is doing. So when I finally did hear from him I was definitely giving an attitude which I was trying to control but unfortunately I didn’t do a very good job at controlling my temper. And when I get like that he just does not know how to deal with me. So he just comes up with a reason to quickly get off the phone with me rather than dealing with my frustrations. It just really angers me when I feel there is a lack of care and concern knowing that I’ve been laying in bed with a severe injury. Literally just nothing is going right at the moment

    • deann-r

      Member
      December 1, 2023 at 10:02 am

      Don’t be too hard on yourself. I think we all get a little cranky when we’re in pain, or don’t feel well. It’s tough to be pleasant all the time. Your guy friend probably gets that but just doesn’t know how he should be responding. Thus the no response. Just keep pushing through, and if you need to vent we’re here for ya 🤗

    • alyssa-silva

      Member
      December 3, 2023 at 8:24 pm

      Hang in there Tammy. It takes me forever to heal from injuries too. I know that’s not what you want to hear but I just wanted to let you know I do share in your frustrations.

      As far as the guy goes, I am definitely not in a position to be giving good advice hahaha. But have you tried communicating your feelings and being super upfront about what you need from him? I’m actually beyond terrible at this 🙃 but I have found that most men just really need you to spell it out for them before they *get it.* I don’t know if this helps lol.

  • tammy

    Member
    December 1, 2023 at 5:14 pm

    Thank you! If anybody knows what we go through when we are injured it’s you all. Things sometimes take us longer to heal then people who don’t have our condition. I appreciate the support

  • tammy

    Member
    December 4, 2023 at 8:44 pm

    Thank you alyssa! Sorry I just told me now saw your reply. I’m hoping to just get my life back at one point. It happened on October 5th and it feels like it’s been a year. I’m just worried about the rest of my body losing strength because of this. But hopefully not. As far as the guy, we actually talked things out this weekend. I sent him a long text Friday night I apologizing for my harsh comments and for basically snapping at him. He said he understood and that no matter how many bad days I go through he’s not going to turn his back on me because of it. And he actually does understand me needing to lean on him more right now. He called me again this afternoon and we had another long talk about everything and he’s being very sweet and understanding about it all. His job has been stressing him out and running him down which I completely understand. But my whole point was a simple two-word text message here and there would be nice. And he agreed that he needs to work on better communication even when he’s exhausted and stressed. So right now we are in a good place which makes me feel a whole lot better about everything. So hopefully things will continue on a positive note. We have been friends since I was 16 and he was 21, so we do have a long history and connection

    • alyssa-silva

      Member
      December 6, 2023 at 1:49 pm

      I’m so happy to hear that you and your guy talked it through! Here’s hoping things continue on a positive path and your knee starts to heal too!

  • tammy

    Member
    December 6, 2023 at 6:12 pm

    Thank you! And here’s hoping… in both regards. So far things have been really good between us again. And as far as my knee, I seem to have good days and bad days. Like yesterday it hurt a lot but today felt better. Hopefully the pain will just continue to decrease so I can get my life back! Thanks for all your support, sometimes it definitely helps to vent to people who understand what it’s like

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