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  • alyssa-silva

    February 25, 2022 at 9:39 am

    Ha, I like that analogy a lot. I think Rare Disease Day is a great way to celebrate our genetic anomalies, but I question how much awareness it actually generates. Do those who haven’t been affected by a rare disease in some way even know this day exists? Considering I only learned about RDD a few years ago, my guess is likely no. So while it’s great for the RDD communities, I wonder how effective this day actually is in terms of, like I said, awareness and educating others on the impacts rare diseases have.

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