SMA News Forums Forums The SMA News Today YouTube Channel White Tigers and Rare Disease Day

  • White Tigers and Rare Disease Day

    Posted by deann-r on February 20, 2022 at 2:00 pm

    In this video, I talk about Rare Disease Day. Yes, it’s a day to bring awareness, but it’s also a day to recognize your uniqueness. Just because you may appear different though, doesn’t mean you’re subhuman. As a white tiger is still a tiger, a person with a rare disease is still a person. What are your thoughts regarding Rare Disease Day?

    alyssa-silva replied 1 year, 3 months ago 1 Member · 1 Reply
  • 1 Reply
  • alyssa-silva

    February 25, 2022 at 9:39 am

    Ha, I like that analogy a lot. I think Rare Disease Day is a great way to celebrate our genetic anomalies, but I question how much awareness it actually generates. Do those who haven’t been affected by a rare disease in some way even know this day exists? Considering I only learned about RDD a few years ago, my guess is likely no. So while it’s great for the RDD communities, I wonder how effective this day actually is in terms of, like I said, awareness and educating others on the impacts rare diseases have.