Forum Replies Created

  • delara

    Member
    November 20, 2020 at 8:03 am in reply to: What Do You Want to See From SMA My Way?

    I ask God for justice. Medicine is my daughter’s right

  • delara

    Member
    November 12, 2020 at 10:44 am in reply to: Search ngo for fund raising

    Thank you very much Kevin. I call them

  • delara

    Member
    November 10, 2020 at 1:34 pm in reply to: Columnist Writes About the Snowball Effect

    hardly

  • delara

    Member
    November 6, 2020 at 1:46 pm in reply to: Looking for Evrysdi Updates

    Hello. Unfortunately, no medicine in our country has been approved by health institutions. Evrysdi has recently received FDA approval and we very much hope it will work better due to its cheaper price and less hassle. So far, Brazil, Japan and the United States have issued licenses, and the drug will likely be available in the next few months. The European Union is also considering the drug.

    Hairy movement milestones in pediatric patients, one year after treatment with Evrysdi(Residiplam)

    https://ibb.co/QCx5Cm1