Unfortunately, there’s a lot of r&d (never mind science in general) that only gets done because it’s subsidized. When the goal is profit nobody is going to gamble much without a high chance of being able to turn a profit in the relatively near future.

Doing my best not to rage about current politics and culture so I’ll stop there.

Yeah, I’m usually working with 4 bottles at a time because they’re so pushy about ordering before needed. I have to ignore the daily calls for a week+ and I recently started ordering as far off as they offer in the iphone app after that. I’m afraid waiting too long might cause an issue so I don’t like putting them off for too long. As long as…

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Shrinking on AppleTv is really good. It’s a dramedy with Harrison Ford and Jason Segel I found recently (biggest name and main character but the cast is great all around). Not something I’d typically give a shot but I did and ended up binging it up to the current episode (s2 ep11). It alternates between heartbreaking and hilarious.

Oh, and…

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Colin and Cristin Milioti (Sophia) are both really good… The cast in general but they’re standouts.

I was excited when I first heard the Dune show would be about the Bene Gesserit. The most interesting part of the movies and what I’ve read so far of the books.

The new Penguin show on HBO has been really good. Waiting on their new Dune show (the new trailer looks so good) and season two of Silo (AppleTV) next month… I think the next season of Severance is due out in January iirc.

Nothing SMA related but I have been kicking around ideas for new tattoos. Might have to think about incorporating something like that…

I think I’m just remembering why I never wore watches much. Even the most comfortable ones get on my nerves after half a day or so. I had planned to wear it all the time and basically replace my phone for most things. But my phone is already pretty convenient and doesn’t irritate my wrist after awhile. If I want to listen to an audio book…

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It’s a cool gadget, but I’m honestly not getting as much use out of it as I had hoped. I probably would have been better served (certainly much cheaper) with a phone mount, or a tablet and mount, for my chair and bed. It will be nice to have the option to leave my phone at home at least, but I don’t get out much.

So… I found the alpine loop very uncomfortable. It’s rough/stiff with almost a sharp edge (as “sharp” as a nylon type material can be). I ordered a $12 trail loop knockoff (HITZEE brand) from Amazon and like it much better. Much softer and easy to get the tightness just right.

Haven’t got it yet. 🙁

I ordered the new Ultra 2 and it’s on backorder with my cell provider, not expected for a few weeks. It’ll be my first smartwatch.

I’ve heard from a lot of people the trail loop is the most comfortable and may be the easiest with the velcro fastening. I considered the trail loop but didn’t like the colors my cell provider offered so I went with the alpine loop instead.

I’ll get the new vaccines at my earliest convenience to stay on top of the latest strains as much as possible. Aside from that I’ll just be my regular germaphobe self.

I’m always walking and I kinda assumed it was because I didn’t get my chair until I was in the early 30s.  But I recently realized that I have no trouble with things like stairs and running in dreams and they’ve been a nemesis all my life.

A side note…  I recently had my first lucid dream.  I got nervous and forced myself awake just to make… Read more

I’m not in a huge rush as I really don’t have respiratory issues and such and getting sick isn’t usually a big deal for me.  But I’ll probably get a second booster by the end of summer just to be safe (keeping an eye on effectiveness data coming in on how much a 4 shot helps, new variants, etc)…  Especially with many safety measures being… Read more

If you enjoy philosophy and/or psychology you might like Very Bad Wizards, The Partially Examined Life, Two Psychologist Four Beers, and Decoding the Gurus.

Sean Carroll’s Mindscape covers a wide range of topics but is mostly science focused (he’s a theoretical physicist).

My current favorite comedy podcast is Your Mom’s House (with Tom and… Read more

My arm was a little sore for a few days after the 2nd shot.  I also had a mild headache for about 12hrs but I get those occasionally and don’t even know that was related to the vaccine.  The risks of the vaccine are small compared to that of getting COVID while unvaccinated.  Unless you’re unable to get vaccinated because of allergies to it’s… Read more

I started Evrysdi on June 15th (my first attempt at treatment).  Can’t say I’ve noticed any clear effects so far, positive or negative.

Avoiding my more/potentially controversial favorites (political, dark humor, etc)…

 

Sean Carrol’s Mindscape – Wide range of topics but Sean is a theoretical physicist, professor at Caltech, and proponent of Everettian (“many worlds”) Quantum Mechanics.

 

Very Bad Wizards- A psychologist and a philosopher having mostly casual… Read more

I’m far from an expert so please take with a grain of salt…

I believe the genetic test would only be needed to measure the numbers of SMN2 gene copies, where as the Risdiplam works by increasing the SMN protein levels.  I would think that measuring protein levels would be pretty straightforward with a blood test (but it may be more… Read more

I haven’t personally noticed any drowsiness from the Centirizine but IIRC I have seen it mentioned as a possible side effect.

Purely anecdotal but between myself and 4 or 5 friends I’ve asked we all prefer Zyrtec (Cetirizine) over Claritin (which did nothing for me) or anything else we’ve tried.  It doesn’t completely alleviate my symptoms but it’s the only thing that’s really seemed to help at all.

I think I’d have to move to somewhere with the most temperate climate possible just to keep my internet.  Couldn’t go without my online gaming…  Everything else I could give up, but not that.