The game does not seem fun, maybe only for very young kids. You just crawl slowly through a big map, did not see much gameplay.

After 10 minutes I found an area where you are supposed to put a ball into a hole by shooting into it (no reward after that). Did not figure out how to leave this area after that, clicked everywhere but was only… Read more

I get the impression that some think type 2 individuals are over represented.

Never heard that, but I guess it makes sense because type 1 were not surviving much until recently, and 3-4 are less severe (+ maybe less common?).

Type 1 is supposed to be the most common type though, but maybe this forum is not popular among the parents.

On… Read more

cocktail to include Spinraza and Eversdy

This makes no sense, they affect the same thing. Evrysdi is good when Spinraza is too difficult to inject, but it often has side effects, so why use it when you can use Spinraza.

The combination makes sense for meds like Apitegromab.

For wearing out, I think there are some trials looking into… Read more

 in Texas, originally from Mexico

How did you move? I always thought it would be extremely difficult to get medical insurance for a new citizen with an already existing severe disability?

I am from Europe, software developer.

I wear glasses all day. The only issue is cleaning them, need to ask someone to do that 1-3 times per day.

Also one possible issue is that they may fall off after some time, but wearing retainers like Wedgees and/or full size headphones prevents that. I guess adjusting frame at the optician until it gets perfect may help too.

What kind of strap do you use? Can you give a link?

How do you sit in your wheelchair? Do you use belts or other support attachments?

I was sitting a bit weirdly in my wheelchair for 10+ years, kind of relying on its a bit unusual seat cushion shape and armrest.

Now I am trying a new wheelchair and can’t find the right way to sit. Trying with its belt (horizontal), seems mostly fine, but I… Read more

The truth is that unless you have money and/or many friends, sooner or later you life will become very miserable. At least for countries not providing some kind of more full time caregivers etc.

Luckily, earning money remotely is quite feasible nowadays, especially in IT, programming etc. There are many courses and other learning materials… Read more

> With Skype able to call landline numbers

I think it can call any numbers, though for mobile it can be expensive (at least in my country).

I think mouse + keyboard should be the most accessible compared to other standard options, especially if you use it every day for other tasks. Experimenting with the mouse/keyboard size, additional mouse buttons, desk height, keyboard/wheelchair tray etc. could help.

Currently I use a low-profile keyboard in a tray below the desk, and a… Read more

The one thing I have to say that I don’t like about it is that there is no warranty. I asked the rep about that and he said no warranty or replacement if it stops working.

hm, their website says 2 years.

“For two (2) years from the delivery date, Kinova guarantees that any defects in materials or workmanship will be covered without any cost to you.”

I think Razer has some smaller mice like Viper Mini.

Or Logitech G102/G203, Steelseries Rival 3.

I also like when there is an additional button on top to assign some hard to reach key to it. I wonder if there is any small mouse with two buttons on top.