This topic contains 3 replies, has 3 voices, and was last updated by  Kelly Miller 2 days, 23 hours ago.

  • Author
  • #11330
     Kevin Schaefer 

    Hi everyone.

    So I’m 24 with Type II, and my arm strength is pretty limited. Given that I’m a writer, I have to make due with what I have. For a while now I’ve been typing primarily on my phone, as it’s too difficult for me to type on a computer or even my iPad at this point.

    For those of you who are SMA adults with limited arm strength, what do you use to type/write? I know there are apps out there and voice-activation devices, but I’m curious to know the pros and cons of each. Ideally I’d like to get some strength back through Spinraza so that I can type on my iPad again, but currently it takes up too much energy.

    Also feel free to ask questions here as well.

  • #11344
     Esther Collington 

    Hello Kevin

    I use an on-screen keyboard (with mouse) on my PC. I’ve tried voice recognition but found it too difficult and time consuming.

    By the way, I live in England and adults don’t get Spinraza here.


    • #11347
       Kevin Schaefer 

      Thanks Esther!

      Yeah I’m looking into an on-screen keyboard. I also think the voice-recognition software is far too time-consuming.

      And that’s unfortunate. I hope the treatment gets approved for adults in England soon!

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