While catching up with a friend recently, I stumbled upon the next topic for this column. It was simple, really. There was no aha moment or life-changing revelation in the conversations we had, but something stuck with me that day. To many, the significance of the conversation could…
Life, One Cup at a Time
— Alyssa Silva
Alyssa Silva is a writer based out of Providence, Rhode Island. She was diagnosed with SMA type 1 in 1991 when she was just 5 months old. Aside from writing, Alyssa is the chief creative officer for an intimates brand and runs a small business selling her artwork. In her free time, you can find her canceling plans to hang out with her golden retrievers, watching reruns of “The Office,” and convincing others why Taylor Swift is the greatest of all time.
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The other day, I got my wheelchair stuck in a doorway. All I wanted to do was see the Christmas decorations at a local coffee shop. Perhaps even enjoy a nice cup of their matcha while quietly watching everything sparkle. Instead, I was wedged in the doorway, pushing my joystick…
In the midst of all the hustle and bustle that is the holiday season, I sometimes feel an overwhelming wave of nostalgia engulf me. To an extent, I imagine we all feel this way during this time of year. December sings a song of good tidings and dances…
I’ve spent a considerable amount of time trying to come up with a topic for this week’s column, and it has been rather difficult. Actually, writing in general has been a struggle. Brain fog is the real deal, friends. And today’s column is brought to you by lack…
I’d imagine if anyone who knows me were to describe me in one sentence, it would go something like this: “Oh, Alyssa? She’s that writer girl who runs a nonprofit organization for her disease, drinks way too much coffee for her own good, and has an unhealthy obsession…
I almost accidentally drank chunky coffee the other day. How’s that for the introduction of all introductions? I thought about easing you into it slowly in an attempt to avoid making your stomach squirm. I explored how I could go about this storyline in a manner that would…
I came up with the idea for this column at 5:45 a.m., when I’m usually just falling into a deep REM cycle. (Sleeping has never come easily for me.) I wish I could say I was up at that ungodly hour (mornings also never come easily to…
One of the most frequently asked questions I receive from readers, friends, and even family members, is how I physically write my columns. The evolution of my ability to write has changed drastically over the years. I will try my best not to bore you with the nitty-gritty details, but…
In May 2017, I became an auntie to a beautiful little boy named Lincoln Anthony. I’ll never forget the day we heard the news. It was a sunny Saturday morning in early fall when my brother’s affectionately named “demon dog” darted into the house wearing a shirt. I…
I had a friend in college who was very much a free spirit. He always went with the flow, never sweated the hard stuff, and was the kind of person who was always up for an adventure. To kill time and unwind together, we used to hop in…
Can I be totally real with you for a second? Putting yourself out there into the world is no easy task. Being honest, sharing your truth, and inviting cyberspace into your own little, unique world is an incredibly vulnerable feeling. What will people think? Are you sharing too…
I think I can speak for the majority of the disability community when I say that we all crave a little more empathy and understanding from others. While I don’t expect a stranger on the street to fall in love with me at first sight, I do expect…
Last week, I wrote about the harsh reality that sometimes is SMA. I retold the story of my attempt to drive through the mountains of New Hampshire and how after breaking down at a gas station, I realized my body had other plans. I explored the…
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