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9 SMA Organizations to Know About


Spinal muscular atrophy (SMA) is a neuromuscular disorder that causes muscle wastage and a loss of motor neurones. There are organizations all over the world that provide care and support to patients, along with their family members and caregivers.

MORE: Seven support care areas which can help patients with SMA 

Here’s some information about organizations around the world that have been recommended by the SMA Foundation:

United States
SMA Foundation: The SMA Foundation was first established in 2003 by parents of a child with SMA. They focus on funding research, and serve as an information hub for those affected by the condition.

Fight SMA: This group dedicates themselves to investing in research, with the hope of finding a cure. They also offer direct support to families.

Gwendolyn Strong Foundation: This foundation offers research grants to universities that are trying to find a cure for SMA and learn more about the disease.

Miracle for Madison and Friends: This organization is dedicated to funding research. Their website is full of useful information on cure updates, research and merchandise.

MORE: Caring for children with SMA, what the experts recommend

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One comment

  1. Hi guys,
    Love your work. Sadly you have missed out TreatSMA organisation on your list. TreatSMA was and is the catalyst behind the EAP and Spinraza approvals in the UK. We have contributed significantly more than we have been given credit for…

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