Social Clips

Make the Most Out of Your Time – Lockdown Tips

Our Forums moderator Kevin Schaefer published his list of entertainment options, perfect for these odd times we’re facing. To discuss, add more recommendations and leave your feedback please join the conversation in our Forums: click here. 1) If at Birth You Don’t Succeed by Zach Anner  …

Check Out Our SMA News Today Multimedia Content

My name is Michael Morale. As director of multichannel content for BioNews Services, my job is to bring engaging multimedia content to all of our rare disease communities. I would like to introduce some of the resources available to our SMA News Today forum…

Follow SMA News Today’s Physical Therapy Coverage

By Michael Morale, BioNews Services’ Director of Multichannel Content Most people go to physical therapy because they’ve suffered an injury or are recovering from surgery. Previously, those of us with spinal muscular atrophy (SMA) were told not to do physical therapy because stressing our muscles to make them stronger…

Medicare and Medicaid: What You Need to Know

Medical costs are expensive, especially for patients with spinal muscular atrophy (SMA). If you’re unable to work, and thus keep a steady income, you may find it difficult to pay your bills and fees. However, for those in the U.S., programs like Medicare and Medicaid might help to…

The ‘SMA News Today’ Forums: Join These Discussions

Since the launch of the SMA News Today forums, SMA patients and caregivers from all over have taken part in various discussions pertaining to life with spinal muscular atrophy. Topics that have so far been covered include acquiring assistance in college, disability and dating, using feeding tubes, having able-bodied siblings…

SMA Author and Nonprofit Founder Heads to China

Kevan Chandler, founder of the nonprofit organization We Carry Kevan, made national headlines in 2016 when some of his closest friends carried him on a specialized backpack across Europe. Chandler has SMA type 2, and since returning from his Europe expedition he’s written a book about the experience and helped…

6 of the Best Apps for Chronic Illness Management

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

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