Piecing together our plans for making a successful move

I’m now in a season of life when things that were once taken apart are getting put back together. In my previous column, I explained that after 29 years of living in our house, my mom and I made a momentous decision to move into a multigenerational home with…

SMA Is Full of Contradictions

This month, I’m celebrating SMA Awareness Month the only way I know how: by recognizing that SMA is full of contradictions. Last year, I wrote an entire jeremiad on my ambivalence toward SMA Awareness Month. I didn’t hate it, but I didn’t like it, either. I recognized the benefits…

When It Rains, It Pours

We all know the saying. It can never just sprinkle. It can never just be a gentle spring rain, with sprouting blades of grass and birds twittering about new beginnings. It’s either drought or deluge. There’s no in between. We’ve all had moments of absolute absurdity. Days when everything…

Imaging Tools to Guide Spinraza’s Use May Help Lower Complications

Adopting image-guided techniques may help physicians lower the risks of complications associated with the administration of Spinraza (nusinersen) in patients with spinal muscular atrophy (SMA), a study has found. Physicians caring for these patients should be familiar with the different techniques and possible complications of treatment administration, researchers…