Is SMA treatment covered by insurance?

The cost of spinal muscular atrophy or SMA treatment is high, and depending on the insurance plan, some companies may provide coverage for disease-modifying therapies, while others won’t. Patients or caregivers should talk to their healthcare team and insurance providers about access to SMA treatments. Due to the Affordable Care Act in the U.S., denials or restrictions in health insurance, or higher premium rates because of a preexisting condition such as SMA, are prohibited.