Here you will find our collection of vlogs created by people with SMA for SMA News Today. Each week, they share their personal stories and perspectives with the SMA community. Watch the latest videos below and follow us on YouTube for more.
In this episode of the Morale Monologue, Michael discusses his recent battle with kidney stones. A few weeks ago, he was admitted to the hospital to have a kidney stone removed. He discusses the procedure and what doctors did to correct the problem. He also offers tips on what to do if you have a urinary tract infection.
Treatment with the approved gene therapy Zolgensma was found to ease breathing difficulties in children with spinal muscle atrophy (SMA), reducing hospitalizations due to respiratory issues by than 25%, according to a real-world…
Children with spinal muscular atrophy (SMA) are at a higher risk of hospitalization due to respiratory tract infections, including those caused by the respiratory syncytial virus (RSV), a small, single-center study in Switzerland…
“It’s just a flesh wound.” The black knight utters this famous line in “Monty Python and the Holy Grail” after losing both arms in battle. He then continues to fight in a…
For the past couple of years, I’ve been playing a Star Wars role-playing game (RPG) with friends from church. Yes, you read that sentence correctly. My church is progressive and a number…
When rumors began circulating years ago that a certain blue police box time machine might be getting an accessible makeover, my interest was more than piqued. Would a ramp truly be added…
People with spinal muscular atrophy (SMA) cleared acetaminophen, a common ingredient in pain medications, slower than healthy people, but this was generally not associated with evidence of liver toxicity for most patients, a…
Children with spinal muscular atrophy (SMA) type 1 may be at an increased risk of developing kidney stones, suggesting the condition may be more common than previously thought, according to a small study…
Growing up, I loved the library’s summer reading program. I’ve always been a bookworm, so logging hours of reading and being rewarded for my hobby was a highly satisfying endeavor. My favorite prizes were,…
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