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Correcting misconceptions about living with SMA

Candis Welch shares surprising questions she’s received about life with spinal muscular atrophy (SMA), from strangers in restaurants to curious passersby. She reflects on misconceptions, daily realities, and the importance of speaking up with honesty and confidence.

Transcript

I think just the strangest thing I’ve ever had anyone ask me is, do I take showers?

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Am I able to take showers? Do I sleep in my chair?

A lot of people will, like, come up to me in restaurants and be like, “Oh, you can’t lift up your arm to grab that fork?” And I’m like, “Actually, no, it’s a part of my disability.”

“What type of disability is that?”

“It’s called spinal muscular atrophy.”

“Oh, so you can’t eat?”

“No, I can eat, I just need some assistance.”

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More videos

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See more videos
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