Skip to content
SMA News Today logo
Newsletter
  • About SMA
    What is SMA?
    • Causes
    • Symptoms
    • Diagnosis
    • Prognosis
    Types
    • Type 0
    • Type 1
    • Type 2
    • Type 3
    • Type 4
    Treatments
    • Approved treatments
    • Experimental treatments
    • Non-drug treatments
  • Living with
    Living with SMA
    Mental health
    Managing fatigue
    Sleep tips
    Speech therapy
    Specialized equipment
    Flying with a wheelchair
  • Community
    Perspectives
    • Embracing My Inner Alien - Kevin Schaefer
    • Being Resilient - Jasmine Ramos
    • Soaring With Hope - Ari Anderson
    • Life, One Cup at a Time - Alyssa Silva
    • Wandering The Lines - Sherry Toh
    • The Wolf Finally Frees Itself - Brianna Albers
    • Caring Together - Connie Chandler
    • We’re Not in Kansas Anymore - Helen Baldwin
    • From Where I Sit - Halsey Blocher
    Videos
    • Building your healthcare team
    • Taking control of your healthcare
    • SMA love story
    • Smart home technology
    • Final SMA gift
    • Theme park preparation
    Features
    • Speaking out for the SMA community
    • Spinal cord stimulation
    Vlogs
    The SMA podcast
  • News
  • Forums
  • Resources
    SMA empowerment
    Find a physician
    Advocacy partners
    Quizzes
    • Genetics, diagnosis, and treatment

Correcting misconceptions about living with SMA

More videos

See more videos

Candis Welch shares surprising questions she’s received about life with spinal muscular atrophy (SMA), from strangers in restaurants to curious passersby. She reflects on misconceptions, daily realities, and the importance of speaking up with honesty and confidence.

Transcript

I think just the strangest thing I’ve ever had anyone ask me is, do I take showers?

Read More

Am I able to take showers? Do I sleep in my chair?

A lot of people will, like, come up to me in restaurants and be like, “Oh, you can’t lift up your arm to grab that fork?” And I’m like, “Actually, no, it’s a part of my disability.”

“What type of disability is that?”

“It’s called spinal muscular atrophy.”

“Oh, so you can’t eat?”

“No, I can eat, I just need some assistance.”

Print This Page

More videos

Wheelchair gang at Disneyland shows strength, SMA pride
Accessibility to maps: Tips for visiting theme parks with SMA
Sharing SMA advocate’s end-of-life discussions is 1 last gift
Tyler’s SMA setup: Technology hacks can help you find independence, comfort, safety at home
See more videos

  Subscribe to our newsletter

Get regular updates to your inbox.

This field is for validation purposes and should be left unchanged.

Bionews Logo Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • SMA News Today on Facebook
  • SMA News Today on X
  • SMA News Today on Instagram
  • SMA News Today on SoundCloud
  • SMA News Today on YouTube
  • SMA News Today on Pinterest
  • About Us
    • Our Culture
    • Leadership
    • Careers
    • Contact Us
  • Explore More
    • Advertising Policy
    • Corrections Policy
    • Editorial Policy
    • Privacy Policy
    • Terms of Service
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.

Log in/Register

[wppb-login register_url="/register" lostpassword_url="/recover-password" ajax=true]

Don't have an account?

Log in

[wppb-login register_url="/register" lostpassword_url="/recover-password" ajax=true]

|

Register

[wppb-register redirect_url="/welcome" ajax=true]

Already have an account?

Register

Create your account by filling in the information below:

[wppb-register redirect_url="/welcome" ajax=true]

By creating an account, you are agreeing to the Privacy Policy and Terms of Service.

Reset Password

[wppb-recover-password ajax=true]