Patients with spinal muscular atrophy (SMA) will need support care in various different areas, from healthcare to daily life. To help you prepare, we’ve put together a list of some of the different support care areas you can expect to come into contact with if you or a loved one has SMA (based on information from CureSMA).
Palliative care simply means looking after the symptoms of the patient and aiming to make them as comfortable as possible. This will depend greatly on the severity of the patient’s SMA and how much they can do for themselves. How much palliative care the patient needs will change over the course of their life.