Wendy is a proven blogger and social media manager who has helped to build online communities for businesses and organizations. She currently heads the website’s social outreach online through social media platforms such as Facebook, Twitter, and Pinterest.
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of ... Read more
Spinraza (Nusinersen) was approved by the FDA in December 2016 for the treatment of children and adults with spinal muscular atrophy (SMA). It’s had the SMA community buzzing the world ... Read more
Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon became aware of ongoing clinical trials that were studying a breakthrough ... Read more
In this HuffPost video, artist Dwayne Szot shares his amazing painting invention. Szot wanted children with disabilities to experience the joys of art but knew that many could not hold pens ... Read more
In this Fight SMA video, Dr. Nanci Yuan talks about the role of cough-assist machines in the treatment of children with spinal muscular atrophy (SMA). She explains that the cough-assist machine is used ... Read more
Many medications and therapies for spinal muscular atrophy (SMA) need to reach the spinal cord to be effective. However, this can be quite difficult to achieve as many medications have ... Read more
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing words. For children and adults with neuromuscular disorders like spinal ... Read more
According to the Muscular Dystrophy Association of New Zealand, there are some vaccinations that all people who have a neuromuscular disorder should have on an annual basis, as well ... Read more
The following videos show how people living with muscular dystrophy (MD) and spinal muscular atrophy (SMA) can smash the stereotypes associated with having a disability, and lead rich and full lives. ... Read more
According to Cure SMA, there are several areas of care that need to be taken into consideration when looking after a child with spinal muscular atrophy (SMA) when they have ... Read more
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