Cure SMA is a non-profit organization committed to helping patients and the family of people with spinal muscular atrophy (SMA). When a patient is diagnosed with SMA, it can be an extremely difficult time for their family. They’re often confused, uncertain about the future and have no idea where to turn for advice and support.
Cure SMA offers newly diagnosed families practical and emotional support, with a variety of resources that can help families come to terms with the diagnosis and begin to make plans for the future.
Here are just a few examples of the services they provide for SMA families:
The organization can send out information packages which explain the condition in full, what to expect as the disease progresses, the treatment options available, latest research information, and practical advice for the day-to-day management of SMA.