9 SMA Organizations to Know About

Spinal muscular atrophy (SMA) is a neuromuscular disorder that causes muscle wastage and a loss of motor neurones. There are organizations all over the world that provide care and support to patients, along with their family members and caregivers.

MORE: Seven support care areas which can help patients with SMA 

Here’s some information about organizations around the world that have been recommended by the SMA Foundation:

United States
SMA Foundation: The SMA Foundation was first established in 2003 by parents of a child with SMA. They focus on funding research, and serve as an information hub for those affected by the condition.

Fight SMA: This group dedicates themselves to investing in research, with the hope of finding a cure. They also offer direct support to families.

Gwendolyn Strong Foundation: This foundation offers research grants to universities that are trying to find a cure for SMA and learn more about the disease.

Miracle for Madison and Friends: This organization is dedicated to funding research. Their website is full of useful information on cure updates, research and merchandise.

MORE: Caring for children with SMA, what the experts recommend

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